Planning for the future
End of life care refers to health care of those with a terminal condition which has become advanced, progressive and incurable. People often want to spend their last days at home and this is usually possible with the right planning and support.
More people are starting to make 'end of life plans' to make it easier for others to support, and carry out their wishes, when the time comes.
Information on COVID-19 support can be found on the Adults Information Service COVID-19 page. Local support groups can be found by searching on 'COVID-19'.
When someone is dying:
- If you know that someone is going to die, tell everyone so it doesn’t come as a shock
- Talk about death openly and honestly
- Support each other. Acknowledge people’s feelings and their different needs
- Don’t forget to look after yourself. Self-care is important
- If you can, find out about the persons wishes and funeral arrangements
- If you will not be able to be with the person whilst they are ill or dying connect with them via phone or video call if you can
The Cambridgeshire and Peterborough NHS Clinical Group has produced some information identifying the main services, including national organisations in the area, that offer support to people that have lost someone. You can view the guide here.
You have the right to express your wishes about where you would like to receive care and where you want to die.
You can find more information on your rights to make decisions on the Compassion in Dying website
It goes against all of our instincts to plan for our death. Death can feel taboo, or scary. People have different attitudes towards death depending on their life experiences and culture. But talking about what you want today, makes it more likely that your wishes will be carried out in the future. It will also help your family to cope.
- Choose the right time, when the person you want to talk to is not rushed or stressed
- Be totally open about how you feel from the start
- You may need to reassure the other person that you are not ill, or withholding anything from them
- Listen to what they are saying too
- Look for a sign that the other person is open to talking about the future. They might mention retirement, or someone they know dying.
- You could start with a question: "have you ever wondered what would happen..."
- Independent Age has more advice on having difficult conversations with a relative
Sometimes we worry about hurting others by having difficult conversations. But people are more often hurt by the conversations that didn't happen.
Dying Matters has created a to do list around having conversations on end of life care.
These have become more common, as more people aim to take control and have a 'good death'.
This includes thinking about:
- whether you want to be resuscitated
- living wills and lasting power of attorney
- decisions on treatments and interventions
- funeral and burial plans
Find more information on end of life care plans on the Compassion in Dying website , and end of life planning on the Age UK website.
You can find lots of information about Power of Attorney and making a will on our Money Matters page.
The Cambridgeshire and Peterborough Clinical Commissioning Group have produced a guide with support available in Cambridgeshire and Peterborough.
You can view the guide here.
Care for the Family.org.uk have produced a guide on supporting friends and family with bereavement – ‘Bereavement: How other people can help’.
Palliative Care Hub
The Palliative Care Hub is a free telephone service in Cambridgeshire and Peterborough for people to call if they require support living with a life limiting illness.
The service is for patients, families, carers, and healthcare professionals who might require palliative or end of life care advice for themselves or patients in the community.
It is part of the NHS 111 service that will initially be available from 5pm to 9:30am Monday to Friday and 24 hours during weekends and bank holidays.
Just call 111 and select option 3 to speak to a specialist palliative care nurse who is available for advice, support and signposting to local services.
What do I do if I can’t get through on the phone immediately?
If you can't get through on your first attempt, please leave a voice message with your name, number and reason for calling and they will aim to call back within 60 minutes. If you do not hear from them within this time, please call us back via 111 option 3.
Do I have to be known to a Hospice or Palliative Care team?
No you don't. Anyone that has been diagnosed with a life limiting illness can access our service.