Skip to main content

Local Offer Parent Carer Participation

Family group

Parent Carer Participation

This page has been set up in response to parents who have requested their own page on the Local Offer, where they can find information on a range of areas and where they can interact.

We are unable to make this page interactive at the moment, but felt it best to start a page of information whilst we look into improving the 'participation' element.

In the meantime, if, as a parent, you want any information to be added, please email:

localoffer@peterborough.gov.uk 

 

SEND Green Paper

The government is committed to improving outcomes for children and young people with SEND and those in alternative provision.

To achieve this ambition the government wants to work with and hear from:

  • children and young people
  • parents and carers
  • those who advocate and work with the SEND sector
  • local and national system leaders

You are encouraged to consider the proposals set out in this green paper and respond to the consultation.

The Department for Education has published accessible versions of the green paper, including:

  • a full British Sign Language version to support those who are deaf or have a hearing impairment
  • an easy-read version to support those with learning disabilities 
  • a guide to help children and young people with SEND or those in alternative provision to understand the green paper and respond to the consultation

 You can find out more on the government page.

Family Voice Peterborough - Including zoom forum sessions for Parent Carers

Family Voice logo

What is Family Voice?

Family Voice Peterborough is a local registered charity who are actively seeking to improve services in all areas of the lives of children and young people with disabilities or additional needs. They support parents and carers of children and young people aged 0—25 years with a disability or additional needs.

Family Voice Peterborough send parent reps and trustees to attend strategic meetings in relation to various strands of the SEND reforms.

The service they provide includes:

  • Helping parents and carers engage with professionals across Health, Education and Social Care.
  • Facilitating participation in service delivery.
  • Providing a voice for parents at strategic level meetings
  • Holding informative events 
  • Helping parents and carers have access to the information about what services are available to them.
  • Signposting parents and carers to other agencies/ organisations who provide specific services that they do not.

Aims:

To ensure parents and carers have a genuine influence in the shaping of services

  • Facilitate participation in service delivery
  • To raise awareness of unmet needs and ensure that parents and carers have the opportunity to raise issues and areas of concern
  • To work in partnership with all other statutory and voluntary organisations
  • To be a positive force to encourage and ensure that the local authority improves services for our children and young people
  • To be the strategic consultative body within Peterborough representing families of children and young people with disabilities and additional needs

You can contact Family Voice by completing their Contact form.

Family Voice Office Address:

105 Paynels
Orton Goldhay
Peterborough
PE2 5QP

Family Voice Telephone number: 01733 685510.

Expert Parent Training Programme

Family Voice offers the Expert Parent Training Programme designed by the Council for Disabled Children.  

The Expert Parent Programme began in 2014, supported by research led by the Every Disabled Child Matters campaign which found that parents and carers of disabled children faced numerous barriers in accessing health services and struggled to navigate the health system. 

The programme was developed with funding support from the Department of Health and Care, NHS England, and Health Education England.

The Expert Parent Programme drew on evidence of the positive impact of parent-led training and empowers parents of disabled children and young people to become more confident and resilient when engaging with health services, and the other services that they come across. 

The course is free to parent carers and can be booked via Family Voice

Upcoming trips, activities and events

You can view all the upcoming events on the Family Voice calendar on their website. (Booking link for all events - bit.ly/2T2xoQ)

Are you following our YouTube Channel? 

We've been uploading some of our virtual events to our YouTube so you can always access them if you're unable to attend. 

Check out this video from our last Parent Carer Workshop: Challenging Behaviours.

Goldhay Centre Community Meet & Eat - Every 3rd Wednesdayof the Month

On the Third Wednesday of the month between 12:30 and 14:30 join us for a two course meal and the chance to chat and have some company.

We ask for a contribution of £3.50 towards the cost of the meal. Although we will not turn anyone away who cannot afford this.

Booking is essential, so we know how many to cater for, as we do not want anyone to miss out or go away hungry. Book on by using this form or call us on 01733 685510

Parent Carer Hub sessions

We are pleased to announce that our Parent Carer Hub sessions are back! Book your 1 x 45-minute online session with an Educational Psychologist to get some useful hints, tips and support.

We have one appointment available per session on the following dates - so don't delay, book your session today.

  • Thursday 26th May 2022
  • Thursday 23rd June 2022
  • Wednesday 20th July 2022

Online meeting - Free

Book your meeting  We will be in touch via email to let you know if you have an appointment slot and you will be sent the link to join the confirmed session.

Beeches Primary School Coffee Morning - 8 June 2022

Tell us what you want. No booking necessary, just drop in. Light refreshments provided. 

9:20 to 10:30

SENI services (open forum) - EHCP updates and future ways of working - 5 July 2022

Virtual meeting (Zoom) 

05/07/2022

10.30-12pm

Free to attend

The SENI Services Team have a few updates for you on all things EHCP.

Do you want to find out more , and also how things are changing? If so then this will be for you. Get informed and Get Involved

Book this event

SENI services (open forum) - PFA with involvement from children/young people - 25 October 2022

Virtual meeting (Zoom) 

25/10/2022

10.30-12pm

The SENI Services Team would like to chat all things PfA with parents and young people.

Do you and your young person wnat to find out what the future may hold?  Do you have questions about what next as your young person approached adulthood?

If so then this will be for you and your young person. Get informed and Get Involved

Hear from: Elizabeth Sullivan-Ash and Others Plus an added bonus: Refreshments Delivered to Your Door

Book this event

Peterborough Open Forum - Local offer update - 17 November 2022

Have you heard of the SEND Information Hub (Local Offer)?

Do you have questions about your child/ young person with SEND but are not sure where to go to find answers?

If so then this will be for you. Get informed and Get Involved Hear from: Roger Valentine

Plus an added bonus: Refreshments Delivered to Your Door

Virtual meeting (Zoom) 

17/11/2022 

10.30-12pm

Book this event

Peterborough Open Forum - Educational Psychology Service 3rd February 2023

The Educational Psychology Service invites you to join them to hear what they do and how they can help.

Want to find out more, ask the team questions and share your views?

If so then this will be for you. Get informed and Get Involved

Hear from: Alison Tolson and the Team Plus an

added bonus: Refreshments Delivered to Your Door

Friday, 3rd February 2023 Free to attend!

Book this event 

Caring Together - parent carer workshops, hubs and resources

Caring Together -  parent carer workshops, hubs and resources

For parents looking after their children with additional needs (parent carers), Caring Together are able to offer a range of information and support including:

  • Carers hubs
  • Family carers’ prescription
  • Listening Ear service
  • Carers magazine and ebulletin
  • Carer’s card
  • Hope Programme
  • Transition planning – the move into adulthood
  • Local offer

View their website for more details

Caring together are offering online workshops covering the following topics.

5 Day offer and social care transition 

https://www.eventbrite.com/e/327943727517

18th May  - 10am-12pm

Mental Capacity Act and DOLs 

https://www.eventbrite.com/e/297985862737 - 

24th May 10am-12pm

Relationships and Friendships for young people with SEN, delivered by Safe Soulmate & Dhiverse

https://www.eventbrite.com/e/310375059157

25th May 10am-12pm

DLA to PIP with Q&A

https://www.eventbrite.com/e/324735020187

8th June 10am-12pm

Universal Credit overview with Q&A

https://www.eventbrite.com/e/328682527287

21st September 10am-12pm

SEND Strategy Information

Girl finger painting

More information

You can find out more about the draft SEND Strategy on the SEND Strategy page.

Topics of importance

Talking points

Family Voice Peterborough (FVP) has decided after some consideration, to adopt the National Network of Parent Carer Forums's (NNPCF) approach to raising issues of importance known as ‘talking points’.

FVP will listen to what topics parent carers feel are most important, evidence these concerns and collate them into specific ‘Topics of Importance’.

The ‘topics of importance’ will detail the issue under discussion, what is being said, any sources of evidence used to develop the ‘topic of importance, what messages will be given to key partners and possible recommendations for change.’

FVP will choose the ‘topics of importance’ based on evidence gathered through online surveys and social media polls, soft intelligence from face to face and online discussions and through other interactions with parent carers in coffee mornings at schools, focus groups, networking events. FVP will also look to find other innovative ways to engage with parents and listen to their concerns as not all parents make use of social media channels.

Parents on Panel

The first Topic of Importance to be published is Parents on Panels. 

The Local Authority response has also been published.

Information and Communication

The second Topic of Importance is Information and Communication.  

The Local Authority response has also been published.

COVID-19

The third Topic of Importance is COVID-19.  

The Local Authority response has also been published 

Education and Communication During COVID-19

The fourth Topic of Importance is Education and Communication During COVID-19  

The Local Authority response has also been published 

Lockdown and access to education for SEND children

The fifth Topic of Importance is Lockdown and access to education for SEND children

The Local Authority response has also been published

Preparing for Adulthood

The sixth Topic of Importance is Preparing for adulthood

The Local Authority response has also been published

Early Help, Support and Carers Wellbeing

The 7th Topic of Importance is Early Help, Support and Carers Wellbeing

The Local Authority response has also been published

SURVEYS FOR YOU TO COMPLETE

COVID Impact on SEND families

Family Voice Peterborough are gathering information to better understand the impact of COVID on SEND families based in Peterborough. This is in light of discussions that have been occurring in their Facebook Chatroom and contact with their parent rep team via email and phone. The information gathered in this form will be included in a Topic of Importance (ToI) which they will share with Peterborough City Council.

The form can be completed more than once of you have more than one child/ young person with SEND (Special Educational Needs and Disabilities).

There will be no personally identifiable data captured on the form.

Closing date 31st May 2022

Take the survey

Family Voice Peterborough - How is the increasing cost of living impacting you and your family? 

(Survey closes 21st May 2022)

Are you a parent carer in Peterborough? Are you finding it increasingly difficult to cover the cost of supporting your child/young person with SEND? How is the increasing cost of living impacting you and your family? We would value your views, which will we share with local decision makers.

Take the survey

Family Voice Peterborough - Preparing for Adulthood survey

(Survey closes 21st May 2022)

Family Voice Peterborough, know that entering the next chapter can be daunting for everyone involved. The ‘preparing for adulthood’ process covers everything from community to employment, and they are gathering views from parents of young people aged 14 to 25 with SEND.

If you have a young person preparing for adulthood or if you and your young person have been on a journey to adulthood, we’d love to hear from you.

Take the survey

SEND Review: Right support, right place, right time

(Survey closes 1 July 2022)

Welcome to the SEND and alternative provision green paper consultation.

The government published the SEND Review: Right support, right place, right time, on 29th March 2022. This sets out our proposals for a SEND and alternative provision system that offers children and young people the opportunity to thrive, with access to the right support, in the right place, and at the right time, so they can fulfil their potential and lead happy, healthy and productive adult lives.

Who is this for?

This consultation is open to anyone with an interest in the SEND and AP systems.

The following list is not exhaustive:

  • Child/young person
  • Parent/carer
  • Anyone working in the SEND sector, including:

Education settings. This includes maintained settings, academies and independent settings, e.g. early years providers, nursery schools, primary, secondary and all through schools, special schools, pupil referral units (PRU), other alternative provision (AP), 16 to 19 schools, further education (FE) colleges, specialist post 16 institutions (SPI), independent learning providers (ILP)

Social services

Local authorities

Health commissioners

Clinicians

Therapists

Designated Medical/ Clinical Officers

Community and voluntary organisations representing children/young people and their parents

SENDIASS (information, advice, support services) advisers

Sector representative organisations

Charities with specific expertise in disabilities

  • Any other interested organisations and individuals

Take the survey

Transitions for children and Young Adults with complex health needs

The National Confidential Enquiry into Patient Outcomes are conducting a survey about transitions for children and Young Adults with complex health needs.

As part of the study we are asking young people and parent carers about their experiences of transition. The aim of the study will be to produce a report for clinicians and other professionals about how to improve the care they deliver, and guidance for young people and families on what care you should expect to receive.

Who should complete this questionnaire?

Please complete this survey if you:

• Are a young person, or the carer of a young person, aged 13 - 24 years old

• You, or the young person you care for, has had experience of moving ongoing healthcare needs from child to adult services

ALL RESPONSES GIVEN AS PART OF THIS SURVEY ARE CONFIDENTIAL

Take the survey

The Council for Disabled Children - Annual Survey

The Children and Families Act came into force in September 2014, heralding the biggest reforms to Special Educational Needs and Disabilities (SEND) in a generation.

At the time, our Director Dame Christine Lenehan said changes would take another generation to embed.

As we reach the Act’s fifth anniversary, we want to hear your views in our annual survey on the experiences, successes and challenges, and get your feedback on future priorities for SEND.

Take the survey

 

Contact a family

Parent carer participation webinars

Contact a Family have published their most recent parent carer participation webinars online, these can be found at the following links:

All other recorded webinars can be found on the Contact a Family web page along with training videos and the latest reports on parent carer participation.

Council for disabled children

Bringing together professionals, practitioners and policy-makers

The Council for Disabled Children is an umbrella body for the disabled children's sector bringing together professionals, practitioners and policy-makers.

View their website

Lessons learnt from lockdown - The highs and lows of the pandemic’s impact on disabled children and young people.

Introduction

The COVID-19 pandemic has brought unprecedented challenges to all children and young people,and even more so for children and young people with special education needs and disabilities (SEND).Yet we haven’t heard much from children and young people with SEND about their experience of the pandemic. The large number of children and young people who took part in this consultation shows us how much children and young people with SEND want to be heard and how much they have to say

What they did

During February and March 2021 more than 643 children and young people with SEND, 128 parents and 110 professionals who work with or support young people with disabilities shared their views and experiences of the COVID-19 Pandemic.

They worked with young people and their support workers to choose the questions for the surveys and focus groups. They made sure that young people had enough time to think about the questions before the focus groups and that they could choose how they felt most comfortable expressing their views.

What they wanted to find out.
  • How the pandemic has been for them? What has been the impact of the pandemic onthem? What was most difficult? Have there been any positive things?
  • What additional support young people will need to help as the lockdown ends andschools go back?
  • Is there anything we can learn from the experience that could help improve things in thefuture for children and young people with SEND.
What did they say

You can find the results of the survey in the Lessons learnt from lockdown - The highs and lows of the pandemic’s impact on disabled children and young people report published on the Council for Disabled Children website

The Seldom Heard project

What is the project?

The Seldom Heard project was launched in recognition of the need to get better at seeking the views of children and adults with learning disabilities and more complex communication challenges.

How can you get involved?

For further information and regular project updates straight into your inbox, you can sign up to the Seldom Heard email network.

To sign up, please email seldomheardvoices@thecbf.org.uk

You can also view the Challenting Behaviour Foundation website to find more details.

Save or reclaim £365 or more after a Government fees overhaul

Families of disabled children trying to access savings held in Child Trust Funds can save or reclaim £365 or more after a Government fees overhaul.

The announcement, and how to claim the money, is being reported by the Money Saving Expert website which was founded by Martin Lewis - https://www.moneysavingexpert.com/news/2020/12/child-trust-fund-fees-waived/.

As explained on the article, CTFs are tax-free savings accounts for kids born between 1 September 2002 and 2 January 2011. Families were given free cash vouchers from the Government of £250 or £500 to put into the account – and some were also given top-ups, meaning children could have been given £1,000 in total. 

However, until now, If a young person didn't have the capacity to manage their own finances, their parent or guardian had to apply to the Court of Protection to manage and access money on their behalf.

For those who had a certain amount in savings, this came at a cost, starting from £365.

You will still need to go to court to access the money, but under the changes fees for doing so will be waived and those who have already paid can get a refund.

Special Education Needs and Disability in Peterborough - SEND Update

SEND newsletter

This Newsletter for parents is published quarterly.