What is the Learning Disabilities and Autism Programme?
The Learning Disabilities and Autism Programme (formally Transforming Care), can improve the lives of children, young people or children and adults with autism and/or learning disability with behaviour that challenges and/or mental health issues. It is about improved support in your community.
This is to try to prevent you having to go to a mental health hospital or residential unit which may be far away from where you live.
Principles of the Learning Disabilities and Autism Programme (formerly transforming care)
There are 9 principles of Learning Disabilities and Autism Programme (formally transforming care).
- I have an interesting life that I enjoy
- My care and support is well planned
- I have choice and control about my care and support
- I live in the community with the support I need
- I have choice about where I live and who I live with
- I get good care from health services
- I get help from experts in the community when I need it
- I get help to stay out of trouble with the police if I need it
- If I have to go into hospital because my health needs cannot be met in the community, it is high quality and I don’t stay there longer than I need to
Why do we have the Learning Disabilities and Autism Programme (formally transforming care)?
Learning Disabilities and Autism Programme (formally transforming care) came about when people with learning disabilities were being treated very badly at a place called Winterbourne View Hospital.
A review took place and a report called “Building The Right Support” explained how the NHS and Local Authority had to work together to make sure children, young people and adults with learning disabilities and/or Autism could get the support they needed nearer to home.
How can the Learning Disabilities and Autism Programme (formally transforming care) help me?
It can improve the lives of children, young people, and adults with learning disabilities and/or Autism who have complex behaviours, which may include a Mental health diagnosis.
- By developing good quality services with our wider partners including the voluntary sector in your community so you don’t have to go into hospital or into an out of area residential unit
- If you do need to go into hospital, that you receive the best care, you don’t stay there longer than you have to and if possible, you go into hospital close to your home and that you have support to resettle back into your local community
If you think that this applies to you or your child, please contact local health commissioners firstname.lastname@example.org
Care, Education and Treatment Reviews (CETR) and Dynamic Support Register
If a person has a learning disability and or autism with complex behaviours, with permission their names can be placed on the Dynamic Support Register (DSR) which will track and monitor their progress and associated risk. Depending on the position of the Dynamic Support Register DSR and risk levels the person may need a Care, Education and Treatment Review (C(E)TR).
Please read the ‘CTR family survival guide’ for more information about Care, Education and Treatment Reviews and Care and Treatment Reviews (CTRs).
On this page you can find a form to request a new C(E)TR
You can also find an Information Sharing Agreement for Children and Young People’s Services consent form.
The Keyworker Collaborative
The Keyworker function
- The keyworker function sits under the Learning Disabilities and Autism Programme
- NHS England and Improvement have made the commitment that all children and young people who are in a mental health setting or who are at risk of admission, will be offered a keyworker to co-ordinate the system.
The Cambridgeshire and Peterborough Keyworker collaborative
The Cambridgeshire and Peterborough Keyworker collaborative is a project designed to prioritise children and young people who are living with a learning disability and/or autism and who have other complex behaviour or mental health needs that could increase their risk of hospitalisation. You can find out more on our Keyworker Collaborative (Local Offer) page.