Preparing for adulthood
For young people with special educational needs or disabilities (SEND), planning for adulthood begins in Year 9 (the school year in which a child has their 14th birthday), and in some cases will continue until their 25th birthday. We often call this phase in life 'transition' or a 'transition to adulthood'.
This phase of “preparing for adulthood” is when professionals will consult with you and your son or daughter to consider if they may need specialist support during transition and into adulthood.
Parents have asked for a comprehensive guide to transitions and we have worked with Family Voice to produce the Transition to Adulthood - A Parents Guide.
Local support groups can be found by using the search term 'COVID-19' in the search box at the top of the page.
When young people transition to adult health services the aim is to ensure that any assessment of need is completed as early as possible and enable a seamless move to appropriate universal and specialist healthcare. Importantly, this includes identifying services that may no longer be available once someone reaches 18 and putting in place alternative healthcare support for young people, and their families, to achieve identified outcomes.
Those who may have a greater need within health service transitions could include:
- young people in receipt of children’s continuing care funding that move to adult continuing healthcare services and funding;
- young people accessing child and adolescent mental health services moving to adult mental health services; and
- young people with an Education, Health & Care (EHC) Plan that identifies other health service in order to meet assessed needs and outcomes.
Mental health difficulties are very common, one in four of us will have problems with our mental wellbeing at some time in our lives. More information can be found on the Mental Health page.
Young people aged 17 and over will be referred into the Adult Mental Health Services via their GP.
Are you uwell and unsure where to get treatment?
Your pharmacist, GP, or NHS 111 can help you get treatment quickly.
You can find out more here. You can also watch the video at the bottom of this page to find out more.
As an adult most of your health services will be accessed through your GP. You can find out lots of useful information about GPs on the Greater Peterborough GP Network.
Things to think about:
- Do you know the telephone number and email address of your local health surgery?
- Do you know how to make an appointment?
- Did you know some surgeries can make online appointments and you do not have to phone?
- Do you know the range of health services available at your surgery?
You may need help to make the appointments with health services and may also need support to get to your appointments.
- Who would you ask for help?
- As you move into adulthood it is important to have a circle of support?
- Which people are in your circle of support?
Paediatric Transition Service
Who is Transition For?
Transition is for anyone over 11 years and older who has an ongoing healthcare need. You may have asthma or epilepsy, you may struggle with your mental health or have diabetes. You may have a learning disability. Whatever your healthcare need, at some stage you will move from the children’s wards & join the adult healthcare system. We know this is scary.
It would be lovely to keep the same medical team that you’ve known for years but unfortunately, they specialise in paediatrics and you’re becoming an adult. You probably don’t want to be surrounded by screaming babies when you come in for appointments either! Besides, the services that the adult healthcare system provide are more suited to your needs now. As you get older your medical condition is likely to stabilise and you’ll be thinking about careers, travelling, relationships, having more freedom etc.
When do I Transition?
There’s no set age – it will vary depending on you, but we like to start at 11 or 12. It can be a little later and we’ll try to start when it’s right for you. You’ll normally move on at around 16 years. This will depend on what team look after you, but it’s worth thinking about the fact that if you needed to be admitted to hospital, once you turn 16 you will normally (with a few exceptions) be admitted on to an adult ward, so it makes sense to prepare as much as possible. We’re here to help you with this.
What is an Annual Health Check?
The Annual Health Check scheme is a free, yearly appointment with your doctor (GP) or Practice Nurse, usually near to where you live. In this appointment your doctor or nurse will ask you questions about how you keep yourself well and whether you need any extra help with this. With your consent they will also check your physical health such as your weight, heart rate and blood pressure. They may ask for a urine sample or a blood test and will also look at any medication that you take to make sure that this is still right for you.
The Annual Health Check is a really good time to ask your GP or nurse any questions or worries that you may have about your health.
Who can have one?
Anyone aged 14 and over who has a learning disability is entitled to have an Annual Health Check. You must be on your GP’s ‘Learning Disability Register’ to get an invite through the post. You can check with your GP if your name is on the register and ask to be added if your name is not on there already.
Why do I need an Annual Health Check?
It is important as you are growing up to stay well and look after yourself and be healthy.
Sometimes children and adults who have a learning disability have poorer physical and mental health than other people, but this shouldn’t always be the case.
Most health problems are simple to treat once you know about them. Your GP can help stop you getting a serious health condition. This is better than waiting until you're ill. Most people have their health check when they are feeling well.
The doctor or nurse can help you to plan how to keep being healthy and can give you information and advice about different things such as diet and exercise.
What if I already see another doctor or nurse who is not at my GP Practice?
You may see other doctors and nurses who help you to stay well, such as at the hospital or in different health clinics. When you are under 18 you may see a Paediatrician (children’s doctor) or another specialist team.
Annual Health Checks are different from appointments at the hospital or other health clinics. They are offered from when you are 14 to help you to get to know your local GP as you are growing up. They help you get used to seeing someone each year to support you to stay well as you become an adult.
Your parents or carers can go to the Annual Health Check with you especially if you are feeling worried or anxious about going to the doctors.
Do I have to have an Annual Health Check?
No, the Annual Health Check is voluntary so you can choose whether or not to have one.
More information about Annual Health Checks can be found on NHS Choices.
There are over 500 easy read leaflets on the Easyhealth website providing a fantastic resource for anyone looking to access clear, practical and easy to understand health information.
Public Health England has launched a major new adult health campaign to seize the opportunity for a national reset moment.
COVID-19 has affected the whole country; for almost everyone, life has had to fundamentally change. But it has also prompted many people to reflect and think more seriously about their health.
Nearly two thirds (63%) of adults in the UK are overweight or living with obesity. Gaining weight is often a gradual process that takes place over a number of years and modern life doesn’t always make it easy. This extra weight causes pressure to build up around vital organs, making it harder for the body to fight against diseases like cancer, heart disease and now COVID-19. By reducing your weight within a healthy range, you can help cut your risk of being critically ill with COVID-19.
The better health website has access to lots of ideas to help you get started on your health improvement journey
Healthy You are a free service for Cambridgeshire and Peterborough residents who are looking to make changes to their lifestyle.
Whether you want help to quit smoking, lead a more active lifestyle, lose some weight, or simply take advantage of the NHS Health Checks they offer, Everyone Health – alongside Cambridgeshire County Council and Peterborough City Council – can help you.
- Adult weight management
- Health trainer
- Health checks
- Stop Smoking
- Alcohol reduction
- National child measurement programme
- Alive and kicking
- Falls prevention
Contact: 0333 005 0093
Most of our children will be treated locally and the local hospital’s Learning Disability Nurse / Advisor will be able to offer help and answer questions.
Learning Disability Nurses understand the needs of people who have a learning disability and/or autism, and also understands how hospitals work.
Nurses/Advisors can work with the hospital to help your young person get the care, treatment and tests they need.
Learning Disability Nurse Easy read document includes more information and contact details.
Together for Short Lives offers transition support for young people with life-limiting or life-threatening conditions which sets out a pathway for moving from child-centred to adult orientated health care systems.
It sets out a number of key standards and goals across healthcare, social care, education, work and housing.
0 to 18 years with life-limiting conditions
East Anglia’s Children’s Hospices (EACH) supports families and cares for children and young people, 0-18 years, with life-limiting conditions.
EACH offers care to families with children and young people who:
live in North, Mid and West Essex, Norfolk, Suffolk, Peterborough and Cambridgeshire
have a condition with no reasonable hope of cure and from which they may/will die in childhood or early adulthood
have a condition (or are diagnosed with a condition in the antenatal period) for which curative treatment may be feasible but can fail, such as children and young people with cancer and for babies born where intensive care has been deemed inappropriate and those with post-natal conditions which result in the baby experiencing unbearable suffering in the course of their illness or treatment.
Over 18 years with life-limiting conditions
Sue Ryder Thorpe Hall Hospice is the only specialist palliative care inpatient unit in Peterborough. They provide care and support for people over the age of 18 who are living with life-limiting conditions, as well as supporting their families.
In 2019 National Lottery Community funding was awarded for a Transition Co-ordinator for young people with life limiting conditions.
Further details can be found on the Sue Ryder website
If you have concerns or complaints about health services you can contact the PALS team.
For hospital-based services you will need to contact the PALS Team at North West Anglia NHS Foundation Trust. You can email them Nwangliaft.firstname.lastname@example.org or call 01733 673 405. Here is a link to their website.
For community-based services you will need to contact the PALS Team at Cambridgeshire and Peterborough NHS Foundation Trust. You can email them on PALS@cpft.nhs.uk or call on 0800 376 0775. Here is a link to their website
You can find out more on the Clinical Commissioning Group's Patient Experience page.
Find out more on the Local Offer Appeals, Mediation and Complaints page.
Owned and run by the NHS, the NHS App is a simple and secure way to access a range of NHS services on your smartphone or tablet.
The NHS App is available now on iOS and Android. To use it you must be aged 13 and over and registered with a GP surgery in England.
What the NHS App does
Use the NHS App to:
- get advice about coronavirus – get information about coronavirus and find out what to do if you think you have it
- order repeat prescriptions - see your available medicines, request a new repeat prescription and choose a pharmacy for your prescriptions to be sent to
- book appointments - search for, book and cancel appointments at your GP surgery, and see details of your upcoming and past appointments
- check your symptoms - search trusted NHS information and advice on hundreds of conditions and treatments, and get instant advice or medical help near you
- view your medical record - securely access your GP medical record, to see information like your allergies and your current and past medicines
- register your organ donation decision - choose to donate some or all of your organs and check your registered decision
- find out how the NHS uses your data - choose if data from your health records is shared for research and planning