The Dementia Engagement and Empowerment Project

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The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK.

What is DEEP?

DEEP stands for the Dementia Engagement and Empowerment Project. DEEP is a network of involvement/influencing groups of people with dementia. These are groups that are working together to:

• raise awareness about dementia

• provide viewpoints to policy makers and decision makers

• influence local dementia services

• challenge other people’s views about what it is like to live with dementia

The network is UK wide. 50 groups are part of the network.

Why is DEEP important?

People with dementia are increasingly sharing their views about living with dementia. By working together, people can have their views heard at a higher level. People with dementia are setting their own priorities about the issues they find important.

What does DEEP do?

There has been support to build the DEEP network from two organisations - Innovations in Dementia and Mental Health Foundation.

Support has included:

• Putting groups in touch with each other. Groups have been able to share ideas and good ways of working

• Getting groups involved in national influencing - for example, with the British Psychological Society, the House of Lords and conference presentations • Collecting examples of different ways that groups work

• Writing monthly updates, to tell groups of each other’s work

• Giving out small amounts of funding. This has helped groups to carry out work that they are interested in

• Producing guidance notes to improve the ways that other organisations work with people with dementia. 

Who to contact

Contact Name
Rachael Litherland
01392 420076 01392 420076
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You can also contact the DEEP Co-ordinators Rachel and Paul as follows:

Rachel Niblock (DEEP Southern Co-ordinator) 07720 538851 /

Paul Thomas (DEEP Northern Co-ordinator) 07510 284760 /


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