Shine (Spina Bifida & Hydrocephalus)
Shine (formerly ASBAH) is the leading UK registered charity providing information and advice about spina bifida and hydrocephalus. Our involvement differs with each family or individual who contacts us. Some of the more common ways we help include:
A dedicated helpline
Support to families
Help for adults and young people
Medical and health information
Information for professionals
You can contact us on any matter relating to hydrocephalus or spina bifida for information or advice on everything from reducing the risk of having a baby with spina bifida, to independent living for adults with the disability.
Shine is here to offer its services to the whole spectrum of those affected by, or with an interest in, hydrocephalus or spina bifida – from before birth (with advice and support, whether or not the pregnancy continues), during childhood and right through adult life.
Our work is financed by voluntary donations, trading activities and grants from charitable and corporate trusts.
We work in partnership with a network of independent affiliated Local Associations to share information and promote good practice, and also to deliver a range of high-quality support and specialist services.
Who to contact
Where to go
- Equality, 42
- PE1 2UQ
Shine provides services from diagnosis of the conditions at a 20 week scan for an expectant mother through to any age. Refferals can be made through any professional and self-referrals are perfectly acceptable. Shine is a disability specific organisation working with those affected y SPina ifida and Hydrocephalus.