Autism Diagnostic Pathway (Local Offer)

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This page provides you with lots of useful information about the transitional pathway for an autism diagnosis.

It is broken into age bands and allows you to find a pathway relevant to a particular age.

What is Autism ?– information and advice

What is Autism – information and advice

Autism is a lifelong neurological condition. People are born with it, do not grow out of it and there is no 'cure'.

Autism is not a learning disability or a mental illness. Autistic people can have other needs, like anyone else. These include:

  • learning disabilities
  • health conditions
  • mental health conditions

Peterborough City Council's SEND Information Hub webpage - Autism (Local Offer) has relevant information to help you understand more about what autism is.

View the Autism webpage 

What is a Neuro-developmental condition

A neuro-developmental condition, includes attention deficit hyperactivity disorder (ADHD), autism spectrum disorder (ASD), or a learning disability.

In peterborough the Cambridgeshire and Peterborough NHS Foundation Trust (known as CAMH) provide a service to offer help to people with this condition who are under 18 years old

Details about the CAMH Neurodevelopmental Service can be viewd on the CAMH Neurodevelopmental Service webpage.

Supporting your Neurodiverse child - Written for parents by parents

When you first realise that your child experiences the world in a different way it can feel overwhelming. But once you begin to understand their way of thinking it can be rewarding and you can learn so much from your child.

Read the 'Supporting your Neurodiverse Child' for more information to help you understand your child better.

I think my preschool/ primary child may have autism

Community Paediatrics (Peterborough)

Community Paediatrics in Peterborough is an out-patient and community service provided by Cambridgeshire and Peterborough NHS Foundation Trust (CPFT).

We work as part of a multi-disciplinary team to provide support to children, young people and their families within Peterborough who have a range of developmental concerns and/ or disabilities.

What do we provide?

We provide assessment and support for children with the following specialist needs or conditions:

  • Developmental Assessment - We see preschool and school age children for developmental assessment when there are significant concerns regarding their development or possibility of severe disability.
  • Autism Spectrum Disorder (ASD) - We provide multi-disciplinary specialist assessment along with Speech and Language Therapists (SALT), Psychologists and Occupational Therapists (OT) for preschool children.

  • Physical disability - We provide initial assessment and ongoing support along with Physiotherapists (PT), Occupational Therapists (OT) and Speech and Language Therapists (SALT).

  • Child in Care (CiC) - We conduct Initial Health Assessments and Review Health Assessments, working jointly with our specialist nursing team.

  • Sensory Impairment - We provide multi-disciplinary and multi-agency clinics for children with hearing and visual impairment, jointly with specialist teachers, Speech and Language Therapists (SALT) and Orthoptists.

  • Down Syndrome clinic - We provide developmental support for children with Down Syndrome (DS).

How to make a referral

Referrals for primary age children should be made to Cambridgeshire Community Service's community paediatricians.

I think I might have autism 5 - 18 years old

What is a Neuro-developmental condition (Neurodivergence)

A neuro-developmental condition, includes attention deficit hyperactivity disorder (ADHD), autism spectrum disorder (ASD), or a learning disability.

In Peterborough the Cambridgeshire and Peterborough NHS Foundation Trust (known as CAMH) provide a service to offer help to people with this condition who are under 18 years old

Details about the CAMH Neurodevelopmental Service can be viewd on the CAMH Neurodevelopmental Service webpage.

How to make a referral

In Peterborough, all referrals for neurodevelopment diagnosis for children aged from 5 to 18 should be made to YOUnited.

YOUnited accepts referrals from all professionals working with children and young people up to the age of 18 who are registered with a GP in Cambridgeshire, Huntingdon, Fenland or Peterborough and are:

  • experiencing significant problems with their mental health with a diagnosis of ASD/ADHD/Learning Disability
  • seeking a neurodevelopmental diagnosis (ADHD or ASD)

 

I think I might have autism and I am over 18

Find all the information you will need on the Cambridgeshire Lifespan Autism Spectrum Service (CLASS) Clinic web page

Making sense of your autism diagnosis

A group of autistic young people have shared their experience of receiving an autism diagnosis

Members of Ambitious about Autism’s Youth Network have created a series of new videos and blogs in which they talk about what it felt like to be diagnosed  - some as children, teenagers or as young adults.  

You can view all the videos and blogs made by young people on the Ambitious about Autism - Making sense of your autism diagnosis - web page 

I am under 18 - Assessment

Please note-not all children will have all assessments listed. Children’s assessments are determined by the team based on the information held.

The Early Years Pathway is up until a young person starts school.  After that we assess all school aged young people up to 18 years.

 ADI-R – Autism Diagnostic Interview-Revised

A detailed developmental history completed with parents and carers. Not all children have this if there is a detailed general developmental assessment or previous developmental history.

ADOS-2 – Autism Diagnostic Observation Schedule-2 

Most children/young people will have this assessment. This is play and talking based assessment for children, young people and adults. Different modules are used depending on speech levels.

BOSA – Brief Observation of Symptoms of Autism 

This is rarely used and is for cases where selective mutism or high anxiety means that young person can’t engage with a clinician.  Brief Observation of Symptoms of Autism is completed with parent/carer or Teaching Assistant in a room with staff observing.

School observations

School observations are undertaken for some primary aged children where information from school and home are in conflict. This does not apply to secondary aged young people.

School information and standardised rating forms

School information and standardised rating forms are collected for all children who are attending school regardless of age.

Home observations

Home observations are used for some children and young people if they aren’t attending school and outcome is not clear from ADOS-2 and ADI-R (see above).

ASD multidisciplinary formulation meeting

All children undergoing assessment are discussed by the multidisciplinary team.  No single part of the assessment is stand alone and all parts are combined and viewed alongside the DSM-V criteria for Autism(The DSM-5 is now the standard reference that healthcare providers use to diagnose mental and behavioural conditions, including autism).  Once a diagnosis is confirmed or ruled out, the case is allocated to a clinician to arrange feedback to family and young person to attend if appropriate.

 

Parent or carer of over 18 year old

Parents of over 18 year olds should view all the information on the Cambridgeshire and Peterborough NHS Foundation Trust Cambridgeshire Lifespan Autism Spectrum Service (CLASS) Clinic web page.

Supporting your Neurodiverse child - Written for parents by parents

When you first realise that your child experiences the world in a different way it can feel overwhelming. But once you begin to understand their way of thinking it can be rewarding and you can learn so much from your child.

Read the 'Supporting your Neurodiverse Child' for more information

 

 

Related Pages

  1. Autism (Adults)
  2. Neuro Developmental Disorders (Local Offer)
  3. Key Worker Collaborative (Local Offer)
  4. Autism (Local Offer)
  5. Learning Disabilities and Autism Programme (Local Offer)
  6. Education (Local Offer)

External Links

  1. CAMH Neurodevelopmental Service
  2. Speech and Language Therapy Service - Children
  3. Psychology Children's Service (Peterborough)
  4. Occupational therapy children's service (Peterborough)
  5. Physiotherapy children's service (Peterborough)
  6. Community Paediatrics (Peterborough)
  7. Cambridgeshire Lifespan Autism Spectrum Service (CLASS) Clinic
  8. Ambitious about Autism
  9. Making sense of your autism diagnosis

Downloads

  1. Supporting your Neurodiverse Child - Written for parents by parents

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