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Local Offer Parent Carer Participation

Family group

Parent Carer Participation

This page has been set up in response to parents who have requested their own page on the Local Offer, where they can find information on a range of areas and where they can interact.

We are unable to make this page interactive at the moment, but felt it best to start a page of information whilst we look into improving the 'participation' element.

In the meantime, if, as a parent, you want any information to be added, please email:

localoffer@peterborough.gov.uk 

 

SEND Green Paper

The government is committed to improving outcomes for children and young people with SEND and those in alternative provision.

To achieve this ambition the government wants to work with and hear from:

  • children and young people
  • parents and carers
  • those who advocate and work with the SEND sector
  • local and national system leaders

You are encouraged to consider the proposals set out in this green paper and respond to the consultation.

The Department for Education has published accessible versions of the green paper, including:

  • a full British Sign Language version to support those who are deaf or have a hearing impairment
  • an easy-read version to support those with learning disabilities 
  • a guide to help children and young people with SEND or those in alternative provision to understand the green paper and respond to the consultation

 You can find out more on the government page.

Family Voice Peterborough - Including zoom forum sessions for Parent Carers

Family Voice logo

What is Family Voice?

Family Voice Peterborough is a local registered charity who are actively seeking to improve services in all areas of the lives of children and young people with disabilities or additional needs. They support parents and carers of children and young people aged 0—25 years with a disability or additional needs.

Family Voice Peterborough send parent reps and trustees to attend strategic meetings in relation to various strands of the SEND reforms.

The service they provide includes:

  • Helping parents and carers engage with professionals across Health, Education and Social Care.
  • Facilitating participation in service delivery.
  • Providing a voice for parents at strategic level meetings
  • Holding informative events 
  • Helping parents and carers have access to the information about what services are available to them.
  • Signposting parents and carers to other agencies/ organisations who provide specific services that they do not.

Aims:

To ensure parents and carers have a genuine influence in the shaping of services

  • Facilitate participation in service delivery
  • To raise awareness of unmet needs and ensure that parents and carers have the opportunity to raise issues and areas of concern
  • To work in partnership with all other statutory and voluntary organisations
  • To be a positive force to encourage and ensure that the local authority improves services for our children and young people
  • To be the strategic consultative body within Peterborough representing families of children and young people with disabilities and additional needs

You can contact Family Voice by completing their Contact form.

Family Voice Office Address:

105 Paynels
Orton Goldhay
Peterborough
PE2 5QP

Family Voice Telephone number: 01733 685510.

Expert Parent Training Programme

Family Voice offers the Expert Parent Training Programme designed by the Council for Disabled Children.  

The Expert Parent Programme began in 2014, supported by research led by the Every Disabled Child Matters campaign which found that parents and carers of disabled children faced numerous barriers in accessing health services and struggled to navigate the health system. 

The programme was developed with funding support from the Department of Health and Care, NHS England, and Health Education England.

The Expert Parent Programme drew on evidence of the positive impact of parent-led training and empowers parents of disabled children and young people to become more confident and resilient when engaging with health services, and the other services that they come across. 

The course is free to parent carers and can be booked via Family Voice

Upcoming trips, activities and events

You can view all the upcoming events on the Family Voice calendar on their website. (Booking link for all events - bit.ly/2T2xoQ)

Are you following our YouTube Channel? 

We've been uploading some of our virtual events to our YouTube so you can always access them if you're unable to attend. 

Check out this video from our last Parent Carer Workshop: Challenging Behaviours.

Goldhay Centre Community Meet & Eat - Every 3rd Wednesdayof the Month

On the Third Wednesday of the month between 12:30 and 14:30 join us for a two course meal and the chance to chat and have some company.

We ask for a contribution of £3.50 towards the cost of the meal. Although we will not turn anyone away who cannot afford this.

Booking is essential, so we know how many to cater for, as we do not want anyone to miss out or go away hungry. Book on by using this form or call us on 01733 685510

Parent Carer Hub sessions

We are pleased to announce that our Parent Carer Hub sessions are back! Book your 1 x 45-minute online session with an Educational Psychologist to get some useful hints, tips and support.

We have one appointment available per session on the following dates - so don't delay, book your session today.

  • Wednesday 20th July 2022

Online meeting - Free

Book your meeting  We will be in touch via email to let you know if you have an appointment slot and you will be sent the link to join the confirmed session.

Join Toni Bailey (Assistant Director SEND / Inclusion  Peterborough and Cambridgeshire), who will be hosting two sessions for parent carers all about the SEND Strategy

14 July 2022 - 5:30pm to 6:30pm & 19 July 2022 -  1pm to 2pm 

There will be:

  • An overview of the Joint SEND Strategy in terms of the key intents and outcomes;
  • A chance to review focus areas of phase 1 and the chance for the parents/carers attending to share their views on progress made;
  • The opportunity to be consulted on focus areas for phase 2.

 
The sessions will take place on teams, and there is no need to book. Simply click the link below on the session you wish to attend.

Thursday 14 July 17:30-18:30 Join conversation (microsoft.com)

Tuesday 19 July 13:00-14:00 Join conversation (microsoft.com)

Social Care and Child Care help and support for families with kids with SEND (14 July 2022)

Do you need support with social care or child care? Join us on Thursday 14th July for a virtual meeting offering you help and advice on social care and child care for families with kids with SEND.

Come along and hear from professionals who specialise in this topic and get your questions answered.

Virtual meeting (Zoom)

Thursday 14 Juky 2022

11am to 12:30pm

Free entry 

Refreshments included

Book this event

Emotion coaching 21/7/22

Summer holidays can be a tricky time for children, young people and the adults who are caring for them. Emotion Coaching uses moments of heightened emotion and resulting behaviour to guide and teach the child and young person about more effective responses.

Find out more about the causes of challenging behaviour and the use of emotion coaching techniques as an intervention strategy to be used at points of heightened emotion at this Family Voice Peterborough free online session.

Book this event

Microsoft Teams meeting

Thursday 21 July 2022

10am to 2pm

Spaces are limited so booking is essential

Free to attend

Family Voice day beside the seaside (Tuesday 2 August 2022)

Wondering how to entertain the kids during the summer holidays? Fancy a day beside the sea? We have the perfect day out for you! We are bringing the local community together with a coach trip to Skegness on Tuesday 2nd August.

For just £7.50 per adult and £5 per child, you can have a fun day out at the seaside. All ages and abilities are welcome and we will try and accommodate wheelchair users where we can.

Spaces are limited, so, don't delay - book your place today! Email office@familyvoice.org or call 01733 685510 for more information.

SENI services (open forum) - PFA with involvement from children/young people - 25 October 2022

Virtual meeting (Zoom) 

25/10/2022

10.30-12pm

The SENI Services Team would like to chat all things PfA with parents and young people.

Do you and your young person want to find out what the future may hold?  Do you have questions about what next as your young person approached adulthood?

If so then this will be for you and your young person. Get informed and Get Involved

Hear from: Elizabeth Sullivan-Ash and Others Plus an added bonus: Refreshments Delivered to Your Door

Book this event

Peterborough Open Forum - Local offer update - 17 November 2022

Have you heard of the SEND Information Hub (Local Offer)?

Do you have questions about your child/ young person with SEND but are not sure where to go to find answers?

If so then this will be for you. Get informed and Get Involved Hear from: Roger Valentine

Plus an added bonus: Refreshments Delivered to Your Door

Virtual meeting (Zoom) 

17/11/2022 

10.30-12pm

Book this event

Peterborough Open Forum - Educational Psychology Service 3rd February 2023

The Educational Psychology Service invites you to join them to hear what they do and how they can help.

Want to find out more, ask the team questions and share your views?

If so then this will be for you. Get informed and Get Involved

Hear from: Alison Tolson and the Team Plus an

added bonus: Refreshments Delivered to Your Door

Friday, 3rd February 2023 Free to attend!

Book this event 

Caring Together - parent carer workshops, hubs and resources

Caring Together -  parent carer workshops, hubs and resources

For parents looking after their children with additional needs (parent carers), Caring Together are able to offer a range of information and support including:

  • Carers hubs
  • Family carers’ prescription
  • Listening Ear service
  • Carers magazine and ebulletin
  • Carer’s card
  • Hope Programme
  • Transition planning – the move into adulthood
  • Local offer

View their website for more details

Caring together are offering online workshops covering the following topics.

5 Day offer and social care transition 

https://www.eventbrite.com/e/327943727517

18th May  - 10am-12pm

Mental Capacity Act and DOLs 

https://www.eventbrite.com/e/297985862737 - 

24th May 10am-12pm

Relationships and Friendships for young people with SEN, delivered by Safe Soulmate & Dhiverse

https://www.eventbrite.com/e/310375059157

25th May 10am-12pm

DLA to PIP with Q&A

https://www.eventbrite.com/e/324735020187

8th June 10am-12pm

Universal Credit overview with Q&A

https://www.eventbrite.com/e/328682527287

21st September 10am-12pm

SEND Strategy Information

Girl finger painting

More information

You can find out more about the draft SEND Strategy on the SEND Strategy page.

Topics of importance

Talking points

Family Voice Peterborough (FVP) has decided after some consideration, to adopt the National Network of Parent Carer Forums's (NNPCF) approach to raising issues of importance known as ‘talking points’.

FVP will listen to what topics parent carers feel are most important, evidence these concerns and collate them into specific ‘Topics of Importance’.

The ‘topics of importance’ will detail the issue under discussion, what is being said, any sources of evidence used to develop the ‘topic of importance, what messages will be given to key partners and possible recommendations for change.’

FVP will choose the ‘topics of importance’ based on evidence gathered through online surveys and social media polls, soft intelligence from face to face and online discussions and through other interactions with parent carers in coffee mornings at schools, focus groups, networking events. FVP will also look to find other innovative ways to engage with parents and listen to their concerns as not all parents make use of social media channels.

Parents on Panel

The first Topic of Importance to be published is Parents on Panels. 

The Local Authority response has also been published.

Information and Communication

The second Topic of Importance is Information and Communication.  

The Local Authority response has also been published.

COVID-19

The third Topic of Importance is COVID-19.  

The Local Authority response has also been published 

Education and Communication During COVID-19

The fourth Topic of Importance is Education and Communication During COVID-19  

The Local Authority response has also been published 

Lockdown and access to education for SEND children

The fifth Topic of Importance is Lockdown and access to education for SEND children

The Local Authority response has also been published

Preparing for Adulthood

The sixth Topic of Importance is Preparing for adulthood

The Local Authority response has also been published

Early Help, Support and Carers Wellbeing

The 7th Topic of Importance is Early Help, Support and Carers Wellbeing

The Local Authority response has also been published

SURVEYS FOR YOU TO COMPLETE

Sensory impairments and community/ education access

Do you care for a child or young person with a sensory impairment? Your views count and Family Voice Peterborough are seeking them to find out the barriers experienced by your child/young person in accessing community services including respite, short breaks and education.

Please take part in their short survey and be in with the chance of winning a family holiday in one of their accessible seaside caravans!

Take the survey (Closing date: Monday 25th July).

Please complete the survey and screenshot the 'thank-you' page at the end. Email this to office@familyvoice.org along with your contact details. Participants must be parent carers living in Peterborough.

Contact a family

Parent carer participation webinars

Contact a Family have published their most recent parent carer participation webinars online, these can be found at the following links:

All other recorded webinars can be found on the Contact a Family web page along with training videos and the latest reports on parent carer participation.

Council for disabled children

Bringing together professionals, practitioners and policy-makers

The Council for Disabled Children is an umbrella body for the disabled children's sector bringing together professionals, practitioners and policy-makers.

View their website

Lessons learnt from lockdown - The highs and lows of the pandemic’s impact on disabled children and young people.

Introduction

The COVID-19 pandemic has brought unprecedented challenges to all children and young people,and even more so for children and young people with special education needs and disabilities (SEND).Yet we haven’t heard much from children and young people with SEND about their experience of the pandemic. The large number of children and young people who took part in this consultation shows us how much children and young people with SEND want to be heard and how much they have to say

What they did

During February and March 2021 more than 643 children and young people with SEND, 128 parents and 110 professionals who work with or support young people with disabilities shared their views and experiences of the COVID-19 Pandemic.

They worked with young people and their support workers to choose the questions for the surveys and focus groups. They made sure that young people had enough time to think about the questions before the focus groups and that they could choose how they felt most comfortable expressing their views.

What they wanted to find out.
  • How the pandemic has been for them? What has been the impact of the pandemic onthem? What was most difficult? Have there been any positive things?
  • What additional support young people will need to help as the lockdown ends andschools go back?
  • Is there anything we can learn from the experience that could help improve things in thefuture for children and young people with SEND.
What did they say

You can find the results of the survey in the Lessons learnt from lockdown - The highs and lows of the pandemic’s impact on disabled children and young people report published on the Council for Disabled Children website

The Seldom Heard project

What is the project?

The Seldom Heard project was launched in recognition of the need to get better at seeking the views of children and adults with learning disabilities and more complex communication challenges.

How can you get involved?

For further information and regular project updates straight into your inbox, you can sign up to the Seldom Heard email network.

To sign up, please email seldomheardvoices@thecbf.org.uk

You can also view the Challenting Behaviour Foundation website to find more details.

Save or reclaim £365 or more after a Government fees overhaul

Families of disabled children trying to access savings held in Child Trust Funds can save or reclaim £365 or more after a Government fees overhaul.

The announcement, and how to claim the money, is being reported by the Money Saving Expert website which was founded by Martin Lewis - https://www.moneysavingexpert.com/news/2020/12/child-trust-fund-fees-waived/.

As explained on the article, CTFs are tax-free savings accounts for kids born between 1 September 2002 and 2 January 2011. Families were given free cash vouchers from the Government of £250 or £500 to put into the account – and some were also given top-ups, meaning children could have been given £1,000 in total. 

However, until now, If a young person didn't have the capacity to manage their own finances, their parent or guardian had to apply to the Court of Protection to manage and access money on their behalf.

For those who had a certain amount in savings, this came at a cost, starting from £365.

You will still need to go to court to access the money, but under the changes fees for doing so will be waived and those who have already paid can get a refund.

Special Education Needs and Disability in Peterborough - SEND Update Newsletter

Advocate for your healthcare and the healthcare of others

RESTORE2™ Mini and STOMP Training

What is it?

Our training gives you the tools you need to advocate for your healthcare and the healthcare of others. Our Super Trainers with a lived experience will help you be taken seriously by health care professionals with the right language and approaches.

The NHS developed RESTORE2™. It is a tool to help people talk to health professionals. It teaches that soft signs are valid signals that a person is becoming unwell. Soft signs are changes to someone’s behaviour and other things that tell you something isn’t right and they are becoming unwell.

The training also gives you the knowledge of where and who within the health services you should contact. You will develop the words to use so you can get the right care at the right time.

STOMP (Stopping Over Medication of People with a learning disability, autism, or both) is a national initiative to stop the overuse of psychotropic (mindaffecting) medicines. People with a learning disability, autism, or both are more likely to be given these medicines than other people. STOMP is about helping people to stay well and have a good quality of life. It is important to check that these medicines are right for that person, particularly as their needs may have changed since they first started taking them.

What will you learn?

  • Spot soft signs of illness in others 
  • Know who to call for healthcare help first 
  • Know what information to provide, how to communicate and what key words to use when speaking to health professionals
  • Build your confidence to deal with health professionals and when advocating for your loved ones

Who is it for?

Anyone wanting to advocate for the healthcare of people with a learning disability, autism, or both.

What will it cost?

The training is free to attend.

Where will it take place?

The training can be face-to-face or online.

Who do I contact for further information?

If you would like more information about the project, or would like to be kept informed of training dates, please email Restore2@thera.co.uk

This project is funded by NHS England.