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Local Offer Parent Carer Participation

Family group

This page has been set up in response to parents who have requested their own page on the Local Offer, where they can find information on a range of areas and where they can interact.

We are unable to make this page interactive at the moment, but felt it best to start a page of information whilst we look into improving the 'participation' element.

In the meantime, if, as a parent, you want any information to be added, please email:

localoffer@peterborough.gov.uk 

Information on COVID-19 support can be found on the Local Offer COVID-19 - Information page and the SEN and Inclusion Services COVID-19 Support page. 

Local support groups can be found by using the search term 'COVID-19' in the search box at the top of the page.

Learning Disability Vision for Adults – have your say

Learning Disability Vision for Adults – have your say

Cambridgeshire County Council and Peterborough City Council are developing a vision for adults with a learning disability in Cambridgeshire and Peterborough to help us know what to focus on when planning services and supporting adults with a learning disability.

Work has been done together with the Speak Out Council, Enabling Independence and the Learning Disabilities Partnership Board to identify some key themes about what people might think is important to enable them to live happier, healthier lives in the future.  Together they have made a survey and developed some activities to help others share their views.

This work links in with the SEND (Special Educational Needs and Disabilities) strategy and the Draft All Age Autism strategy. 

The results from the survey will be used to help develop a longer term vision and commissioning intentions for adults with Learning Disabilities over the next 3 to 5 years.  It will be coproduced and will link in with the SEND (Special Educational Needs and Disabilities) strategy and the Draft All Age Autism strategy. 

We want to hear in particular from young people with a learning disability, their families and carers and anyone involved in providing education, health, social care or other support to them, but anyone with an interest can share their views.

How to give your views.

  • Complete the online survey here
  • Compete the Easy Read survey here

There are also a range of person centred activities developed with the Speak Out Council (e.g. my ideal week, a shield) which you can use to share your views. 

These activities are available to download here.

Please can you complete the survey by 30 June 2021.

The results from the survey will be used to help develop a longer term vision and commissioning plan for adults with Learning Disabilities for the next 3 to 5 years which will link to the SEND strategy and the Draft All Age Autism strategy so please do share your views!

SEND Strategy Information

Girl finger painting

You can find out more about the draft SEND Strategy on the SEND Strategy page.

Family Voice Peterborough

Family Voice logo

Family Voice Peterborough

Family Voice Peterborough is a local registered charity who are actively seeking to improve services in all areas of the lives of children and young people with disabilities or additional needs. They support parents and carers of children and young people aged 0—25 years with a disability or additional needs.

Family Voice Peterborough send parent reps and trustees to attend strategic meetings in relation to various strands of the SEND reforms.

The service they provide includes:

  • Helping parents and carers engage with professionals across Health, Education and Social Care.
  • Facilitating participation in service delivery.
  • Providing a voice for parents at strategic level meetings
  • Holding informative events 
  • Helping parents and carers have access to the information about what services are available to them.
  • Signposting parents and carers to other agencies/ organisations who provide specific services that they do not.

Aims:

To ensure parents and carers have a genuine influence in the shaping of services

  • Facilitate participation in service delivery
  • To raise awareness of unmet needs and ensure that parents and carers have the opportunity to raise issues and areas of concern
  • To work in partnership with all other statutory and voluntary organisations
  • To be a positive force to encourage and ensure that the local authority improves services for our children and young people
  • To be the strategic consultative body within Peterborough representing families of children and young people with disabilities and additional needs

You can contact Family Voice by completing their Contact form.

Family Voice Office Address:

105 Paynels
Orton Goldhay
Peterborough
PE2 5QP

Family Voice Telephone number: 01733 685510.

COVID-19 update (27 March 2020)

As parent carers ourselves we appreciate how truly frightening and difficult this time is for all of you. As such we have arranged to operate a rota system for a helpline that parent carers can dial into if you need advice, sign posting or simply to hear someones voice. This will be available from 12pm - 3pm on weekdays by calling 01733 685510, or alternatively you can email office@familyvoice.org to request a call back.

Upcoming trips, activities and events

You can view all the upcoming events on the Family Voice calendar on their website.

You can also see a pdf of their planned workshops, activities and meetings in their Upcoming Events flyer

Expert Parent Training Programme

Family Voice offers the Expert Parent Training Programme designed by the Council for Disabled Children.  

The Expert Parent Programme began in 2014, supported by research led by the Every Disabled Child Matters campaign which found that parents and carers of disabled children faced numerous barriers in accessing health services and struggled to navigate the health system. 

The programme was developed with funding support from the Department of Health and Care, NHS England, and Health Education England.

The Expert Parent Programme drew on evidence of the positive impact of parent-led training and empowers parents of disabled children and young people to become more confident and resilient when engaging with health services, and the other services that they come across. 

The course is free to parent carers and can be booked via Family Voice. 

Enjoy a holiday and support Family Voice Peterborough

Family Voice Peterborough have caravans at Butlins in Skegness and Haven at Caister-on-Sea which they use to provide respite for families with children and young people with special educational needs and disabilities.

They also rent the caravans out to the wider public and, despite prices rising everywhere due to high demand for a UK holiday, they have decided to keep theirs low to allow residents in Peterborough to enjoy an affordable seaside holiday.

Find our more on Family Voice's website.

Topics of importance

Family Voice Peterborough (FVP) has decided after some consideration, to adopt the National Network of Parent Carer Forums's (NNPCF) approach to raising issues of importance known as ‘talking points’.

FVP will listen to what topics parent carers feel are most important, evidence these concerns and collate them into specific ‘Topics of Importance’.

The ‘topics of importance’ will detail the issue under discussion, what is being said, any sources of evidence used to develop the ‘topic of importance, what messages will be given to key partners and possible recommendations for change.’

FVP will choose the ‘topics of importance’ based on evidence gathered through online surveys and social media polls, soft intelligence from face to face and online discussions and through other interactions with parent carers in coffee mornings at schools, focus groups, networking events. FVP will also look to find other innovative ways to engage with parents and listen to their concerns as not all parents make use of social media channels.

Parents on Panel

The first Topic of Importance to be published is Parents on Panels. 

The Local Authority response has also been published.

Information and Communication

The second Topic of Importance is Information and Communication.  

The Local Authority response has also been published.

COVID-19

The third Topic of Importance is COVID-19.  

The Local Authority response has also been published 

Education and Communication During COVID-19

The fourth Topic of Importance is Education and Communication During COVID-19  

The Local Authority response has also been published 

Lockdown and access to education for SEND children

The fifth Topic of Importance is Lockdown and access to education for SEND children

The Local Authority response has also been published

Preparing for Adulthood

The sixth Topic of Importance is Preparing for adulthood

The Local Authority response has also been published

SURVEYS FOR YOU TO COMPLETE

The National Institute for Health Research study on the impact of COVID-19 on children and young people with SEND.

The National Institute for Health Research have launched a new study on the impact of COVID-19 on children and young people with SEND.

With your help we can all work together to inform the provision of Special Educational Need and Disability support for children after the COVID-19 pandemic. Please click on one of the following options so we can direct you to the survey that's right for you: 

Learning Disability Vision for Adults – have your say

Cambridgeshire County Council and Peterborough City Council are developing a vision for adults with a learning disability in Cambridgeshire and Peterborough to help us know what to focus on when planning services and supporting adults with a learning disability.

Work has been done together with the Speak Out Council, Enabling Independence and the Learning Disabilities Partnership Board to identify some key themes about what people might think is important to enable them to live happier, healthier lives in the future. Together they have made a survey and developed some activities to help others share their views.

This work links in with the SEND (Special Educational Needs and Disabilities) strategy and the Draft All Age Autism strategy.

We want to hear in particular from young people with a learning disability, their families and carers and anyone involved in providing education, health, social care or other support to them, but anyone with an interest can share their views.

How to give your views.

  • Complete the online  survey  here
  • Compete the Easy Read survey here
  • Fill in the paper Easy Read Survey (attached)
  • There are also a range of person centred activities developed with the Speak Out Council (e.g. my ideal week, a shield) which you can use to share your views.  These activities are available to download here.

Please can you complete the survey by 30th June.

The results from the survey will be used to help develop a longer term vision and commissioning plan for adults with Learning Disabilities for the next 3 to 5 years which will link to the SEND strategy and the Draft All Age Autism strategy so please do share your views.

Giving a voice to neurodivergent young people who struggle with school

The 'Why School is Difficult' project

Everyone is neurodiverse, as all of our brains work differently, but approximately 20% of people are neurodivergent. Being neurodivergent means you have less common differences in how your brain works. This could include autism, ADHD, dyslexia, dyspraxia, dyscalculia, Tourette's and more.

​One difficulty is that people can't see your brain is wired differently, which can result in being misunderstood and your individual needs not being met. This is why we have started the 'Why School is Difficult' project: to discover and share what can be done differently to ensure education works for everyone.

The 'why school is difficult' website has 4 surveys that you can use to give feedback about your experience. Choose from 1 of the 4 surveys below.

The Council for Disabled Children - Annual Survey

The Children and Families Act came into force in September 2014, heralding the biggest reforms to Special Educational Needs and Disabilities (SEND) in a generation.

At the time, our Director Dame Christine Lenehan said changes would take another generation to embed.

As we reach the Act’s fifth anniversary, we want to hear your views in our annual survey on the experiences, successes and challenges, and get your feedback on future priorities for SEND.

Complete the survey

Contact a family

Contact A Family

Contact a Family have published their most recent parent carer participation webinars online, these can be found at the following links:

All other recorded webinars can be found on the Contact a Family web page along with training videos and the latest reports on parent carer participation.

Council for disabled children

The Council for Disabled Children is an umbrella body for the disabled children's sector bringing together professionals, practitioners and policy-makers.

View their website

Lessons learnt from lockdown - The highs and lows of the pandemic’s impact on disabled children and young people.

Introduction

The COVID-19 pandemic has brought unprecedented challenges to all children and young people,and even more so for children and young people with special education needs and disabilities (SEND).Yet we haven’t heard much from children and young people with SEND about their experience of the pandemic. The large number of children and young people who took part in this consultation shows us how much children and young people with SEND want to be heard and how much they have to say

What they did

During February and March 2021 more than 643 children and young people with SEND, 128 parents and 110 professionals who work with or support young people with disabilities shared their views and experiences of the COVID-19 Pandemic.

They worked with young people and their support workers to choose the questions for the surveys and focus groups. They made sure that young people had enough time to think about the questions before the focus groups and that they could choose how they felt most comfortable expressing their views.

What they wanted to find out.

  • How the pandemic has been for them? What has been the impact of the pandemic onthem? What was most difficult? Have there been any positive things?
  • What additional support young people will need to help as the lockdown ends andschools go back?
  • Is there anything we can learn from the experience that could help improve things in thefuture for children and young people with SEND.

What did they say

You can find the results of the survey in the Lessons learnt from lockdown - The highs and lows of the pandemic’s impact on disabled children and young people report published on the Council for Disabled Children website

SEND Update Newsletter

SEND Update Newsletters

Find links to our SEND Update Newsletter in this section 

You can subscribe directly to the newsletter by clicking the 'receive updates' tab at the top of the webpage or by emailing localoffer@peterborough.gov.uk.

Most recent issue 

March 2021 issue of the SEND Update 

Archived issues

November/December 2020 issue of the SEND Update

March/April 2020 issue of the SEND Update

The Seldom Heard project

What is the project?

The Seldom Heard project was launched in recognition of the need to get better at seeking the views of children and adults with learning disabilities and more complex communication challenges.

How can you get involved?

For further information and regular project updates straight into your inbox, you can sign up to the Seldom Heard email network.

To sign up, please email seldomheardvoices@thecbf.org.uk

You can also view the Challenting Behaviour Foundation website to find more details.

Save or reclaim £365 or more after a Government fees overhaul

Families of disabled children trying to access savings held in Child Trust Funds can save or reclaim £365 or more after a Government fees overhaul.

The announcement, and how to claim the money, is being reported by the Money Saving Expert website which was founded by Martin Lewis - https://www.moneysavingexpert.com/news/2020/12/child-trust-fund-fees-waived/.

As explained on the article, CTFs are tax-free savings accounts for kids born between 1 September 2002 and 2 January 2011. Families were given free cash vouchers from the Government of £250 or £500 to put into the account – and some were also given top-ups, meaning children could have been given £1,000 in total. 

However, until now, If a young person didn't have the capacity to manage their own finances, their parent or guardian had to apply to the Court of Protection to manage and access money on their behalf.

For those who had a certain amount in savings, this came at a cost, starting from £365.

You will still need to go to court to access the money, but under the changes fees for doing so will be waived and those who have already paid can get a refund.

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